A learning disability can affect the way that some children understand information and how they communicate. This means that they might have difficulty understanding new or detailed information, learning new skills or coping with some everyday tasks. Learning disabilities can also include conditions affecting how a child develops as well as social and emotional development and behaviour. As a parent, you are likely to notice if your child’s development at a certain age is behind that of your other children, or children that you know.
Learning disabilities can also be called ‘Intellectual Disability’, special needs, or additional needs. In nurseries and schools, the phrase ‘Additional Support for Learning’ (ASL) is used to describe the extra help provided to children with an intellectual disability or other support needs.
We understand that children and young people with learning disabilities can find coming to hospital difficult or even overwhelming. This may be because they struggle with meeting new people or because they find it difficult to adjust to an unfamiliar place. We also understand that families caring for children and young people might benefit from extra help, support and information. For example, they may need specialist help and reassurance to prepare for appointments or visits to hospital.
Coming to hospital
Coming to hospital, having an appointment or coming to a clinic can be a worrying time for anyone and can be particularly worrying for a child with a learning disability. We have created some resources for children, young people and their parents and carers to help them prepare for a visit to hospital, the family doctor (GP) or a local health centre.
Social story: ‘Coming to see the doctor’ (from Blair Thomson)
Welcome to the RHCYP
Visiting the Dentist
Coming for day case surgery
Accessible facilities at the RHCYP
The Royal Hospital for Children and Young People in Edinburgh is a purpose-built children’s hospital for babies, children and young people up to the age of 16 (sometimes up to 18). It has a range of accessible and family-friendly facilities including Changing Places toilets, hearing loops, accessible parking and close-proximity spaces, quieter waiting spaces, outdoor gardens and a Family Sitting Room.
Supporting Communication
There are staff at the RHCYP with specialist knowledge of inclusive communication including sign language and visual aids such as Boardmaker. You can request help before a planned appointment or visit by contacting the department you are visiting using the details on your appointment letter, or contact the Learning Disability Liaison Nurse (details in tab below).Learning Disability Liaison Nurse
- Directly supporting parents and carers
- Working with departments and services to help young patients prepare
- Adapting information and ensuring accessible communication
- Working with NHS Lothian staff to improve understanding.
Who is it for?
Any child or young person with a learning disability who needs additional support to access hospital services at the RHCYP or across NHS Lothian regardless of where they might live.
